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Lynch Syndrome Australia (LSA) has officially been incorporated into Cancer Council Victoria, with all activities transferred to the new charity as of 30 June 2023.

LSA has been an all-volunteer run organisation since its inception in 2012, founded and governed by Lynch Syndrome survivors.

While the passion and dedication of the LSA team have seen the organisation achieve remarkable outcomes for those faced with Lynch Syndrome – such as improved awareness and increased screening for hereditary cancers – the integration with Cancer Council Victoria ensures future stability for impacted families and individuals by way of increasedsupport mechanisms.

Founding Director of Lynch Syndrome Australia, Beth Fairbank, said she was proud of how far the consumer-led organisation had come, and was grateful for the support LSA has received over the years.

“I would personally like to thank all of the volunteer Directors for their endless hours, true passion and dedication. Eve, Toni, Sharon, and of course, in loving memory of Susan who fought for our families living with Lynch Syndrome, right until the end”, she said.

“Thank you to everyone who has supported us over the years, and the many health care professionals who took the time to hear us, and helped us raise much-needed awareness of Lynch Syndrome.

“There’s still a lot to be done, but we’re confident that Cancer Council Victoria will continue this important work and achieve great outcomes for those facing hereditary cancer,” Beth said,

This move also ensures stable and consistent funding to support ongoing research into hereditary cancers, with Cancer Council Victoria also planning to increase training and awareness for health care professionals.

Cancer Council Victoria’s Chief Executive Officer Todd Harper AM said he was pleased about the integration and the opportunity to continue LSA’s ambitions.

“We’re honoured to continue the work that Lynch Syndrome Australia has been so passionately and tirelessly doing for years, with a focus on improving support and awareness for Lynch syndrome and other hereditary cancer predisposition syndromes,” he said.

You can read Cancer Council Victoria’s full media release here.

The Lynch Syndrome Australia website will remain open for a short period during this transition. If you have any questions about Lynch syndrome for yourself or your family, please contact Cancer Council Victoria directly.

Many families. Many cancers. One common cause.

We aim to empower Australians to investigate their risk, educate the medical profession, evolve campaigns to highlight this genetic condition and achieve equity in access, diagnosis, treatment and hope.

A greatly increased risk of developing cancer across the lifetime

Thousands of Australians estimated to have Lynch syndrome

Over 90% of individuals remain undiagnosed and vulnerable

Australia’s Untold Health Story

A new health report from consumers reveals over 80,000 Australians are at increased risk of developing one or more often-aggressive primary cancers in their lifetime, don’t actually know they’re at risk. Lynch syndrome Australia has released Lynch syndrome: Australia’s untold health story

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Be Informed

Lynch Syndrome Australia is committed to providing up-to-date and timely information to Australian families affected by Lynch syndrome. Our patient education conferences do just that. If you would like to attend one of these conferences, find out more below.

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Your Story

Rowan’s wife just wasn’t convinced. In fact, that May day in 2013, India was pretty sure that he was faking the pain in his stomach to avoid a social engagement later that day. But the Melbourne banker was not pretending, and within a week…

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Know the indicators of Lynch syndrome within a family


3 or more family members diagnosed with a Lynch syndrome associated cancer


2 consecutive generations or more affected


1 affected family member diagnosed with a Lynch syndrome associated cancer before 50 years of age

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