Our Mission

Mission Statement

Our mission is simple: to serve Australians living with Lynch syndrome.

  • We offer practical support and the latest information;
  • We educate and work with healthcare professionals
  • We tell the wider community about the challenges we face
  • We fight for more research, resources and recognition for everyone affected by Lynch syndrome

We are founded and governed by Lynch syndrome survivors and healthcare professionals who understand the condition and its challenges.

When diagnosed early and properly supported, people with Lynch syndrome have a much better chance of surviving and thriving. We are dedicated to empowering the families involved, improving care and demanding respect for everyone living with this lifelong risk.


Our Primary Objectives

Information and Resource

Access to timely, relevant and reliable information for families with Lynch syndrome by developing specific content for inclusion on the website and social media channels. Improve access to timely, relevant and reliable information for health professionals by developing specific content for inclusion on the website and for distribution in both electronic and printed form.

Health Care Reform Contribution

Actively engage in and contribute to the health care reform process, both as a peak body and in collaboration with other consumer organisation to ensure the unique needs and concerns of families with Lynch syndrome are recognised, understood and given due consideration and response.


Strengthen Collaboration

Continue to identify, develop and strengthen our networks and collaborations with peak bodies, cancer support organisations, corporate organisations and academic research teams to ensure that we both benefit from, and actively contribute to, strategic efforts to improve the physical, emotional and financial well-being of families with Lynch syndrome.