Adelaide - 'Living with Lynch Syndrome' - We are waiting to see if we are able to get a bigger venue for this conference so we don't have to turn anyone away. Hopefully we'll know this week. Details & registration forms will be posted soon!
Lynch Syndrome Hereditary Cancer Awareness Day 22 March 2014 (day before for a working day). We have brochures & Awareness Ribbons. Check out our ideas for raising awareness in your community!
Raising Awareness in Your Community Awareness Poster for you to Print and Put Up in Your Office
Our primary mission is to serve our Australian communities by focusing on providing support for individuals afflicted with Lynch Syndrome, creating public awareness of the syndrome, educating members of the public, outreach to medical professionals, in person, by mail, phone and through exhibiting at medical conferences
We will offer complimentary speaking services to organisations and institutions and provide support for Lynch Syndrome research endeavour.
What is Lynch Syndrome?
Lynch syndrome, also known as hereditary nonpolyposis colorectal cancer (HNPCC) predisposes individuals to an approximate 80% chance of contracting colorectal cancer during one's lifetime as well as an up to 60% chance of contracting endometrial cancer.
Diagnosed individuals possess a higher than average risk of contracting various cancers of the gastrointestinal organs, cancers of the abdominal area, the ovaries, the esophaegus, the bladder, the ureter, the kidneys, the liver, the gallbladder duct, the pancreas, the prostate, the skin and the brain.
Because Lynch syndrome is hereditary, a 50% chance exists that a person will pass it down to one's children. Lynch syndrome does not skip generations.
Lynch syndrome is the result of an inherited genetic defect mostly involving the MLH1, MSH2, MSH6 and PMS2 genes. Other less common mutated genes involved with Lynch syndrome exist but the most common are the MLH1 and the MSH2.