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Our Melbourne Living With Lynch Syndrome event is filling fast.  Our guest speakers so far include; Prof Finlay Macrae presenting on latest Australian research and the CaPP3 study, Associate Prof Gregor Brown on advances in colon cancer screening and Dr Kym Reid  a review of preventative surgical options for women with Lynch syndrome-risks, benefits, future implications on health.

Saturday, 22 November, 2014.

Registration form for Melbourne Living with Lynch Syndrome


Lynch Syndrome Australia will be conducting an online survey soon.  Please check back for more details.


Click on the link above to see how these medical professionals are improving the awareness and understanding of Lynch syndrome.


As a Healthcare professional, I am delighted to support Lynch Syndrome Australia’s Knowledge is Power campaign and am committed to helping to improve awareness of Lynch syndrome, an hereditary condition which exposes families to an extreme high risk of contracting multiple aggressive cancers. 


Name – Professor Robyn Ward

Occupation – Head of the Adult Cancer Program Lowy Cancer Research Centre

Location – Prince of Wales Clinical School, UNSW


Name – Dr Daniel Buchanan

Occupation – Senior Research Fellow

Location – Department of Pathology and Centre for Epidemiology and Biostatistics, University of Melbourne


Name –Dr David G. Hewett, Associate Professor & Director, Medical Leadership Program

Occupation – Gastroenterologist and Therapeutic Colonscopist

Location – University of Queensland School of Medicine


Name –Dr Kathy Tucker

Occupation – Geneticist

Location – Prince of Wales and St George, Hereditary Cancer Clinic

Name –Dr Rachel Susman

Occupation – Clinical Geneticist

Location – Genetic Health Queensland, Royal Women’s Hospital


Name –Dr Michael Gattas

Occupation – Clinical Geneticist

Location – Genetic Health Queensland & Brisbane Genetics, Wesley Medical Centre

Name –Professor Andreas Obermair

Occupation – Gynaecological Oncologist

Location –Royal Brisbane Women's Hospital & Greenslopes Private Hospital

Name –Jan Wakeling

Occupation – Associate Genetic Counsellor/Coordinator 

Location –QLD Familial Cancer Registry, Royal Women's and Children's Hospital - Genetic Health QLD

Name – Dr Rachel Susman

Occupation – Senior Genetic Counsellor

Location –Royal Women's and Children's Hospital - Genetic Health QLD

Name –Professor Finlay Macrae

Occupation – Head, Colorectal Medicine & Genetics

Location –Royal Melbourne Hospital





Our primary mission is to serve our Australian communities by focusing on providing support for individuals afflicted with Lynch Syndrome, creating public awareness of the syndrome, educating members of the public, outreach to medical professionals, in person, by mail, phone and through exhibiting at medical conferences 

We will offer complimentary speaking services to organisations and institutions and provide support for Lynch Syndrome research endeavour.

What is Lynch Syndrome?

Lynch syndrome, also known as hereditary nonpolyposis colorectal cancer (HNPCC) predisposes individuals to an approximate 80% chance of contracting colorectal cancer during one's lifetime as well as an up to 60% chance of contracting endometrial cancer.

Diagnosed individuals possess a higher than average risk of contracting various cancers of the gastrointestinal organs, cancers of the abdominal area, the ovaries, the esophaegus, the bladder, the ureter, the kidneys, the liver, the gallbladder duct, the pancreas, the prostate, the skin and the brain.

Because Lynch syndrome is hereditary, a 50% chance exists that a person will pass it down to one's children.  Lynch syndrome does not skip generations.

Lynch syndrome is the result of an inherited genetic defect mostly involving the MLH1, MSH2, MSH6 and PMS2 genes. Other less common mutated genes involved with Lynch syndrome exist but the most common are the MLH1 and the MSH2.